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Search Results: "Special Books by Special Kids"

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  • 13:16 Life with One of the Worlds Rarest Syndromes (Hallerman-Streiff)

    Life with One of the Worlds Rarest Syndromes (Hallerman-Streiff)

    288 views / 0 likes - added

    Michelle is one of only a few hundred people ever known to have Hallerman-Streiff syndrome. Instead of worrying about the future, she just takes it one day at a time. https://www.patreon.com/SBSKSBSK's Socials:http://www.instagram.com/specialbooksbyspecia

  • 10:10 A Mom with ALS (Lou Gehrigs Disease)

    A Mom with ALS (Lou Gehrigs Disease)

    168 views / 0 likes - added

    Sara was diagnosed with ALS and told she had 3 years to live. Upon learning this she made the goal to survive until her children graduate high school. Now 14 years later, Sara is getting close to her goal with help from her kids. SBSK Patreon: https://www

  • 10:11 AJ's Life with Microcephaly and a Brain Injury (An Existence Filled with Love)

    AJ's Life with Microcephaly and a Brain Injury (An Existence Filled with Love)

    209 views / 0 likes - added

    AJ is diagnosed with microcephaly and was deprived of oxygen for ten minutes at birth. This resulted in an anoxic brain injury. LaFonda, who adopted him after originally serving as his nurse, believes that AJ is deserving of a loving family.SBSK Patreon (

  • 10:33 Porter the Explorer (1 of 30 in Human History)

    Porter the Explorer (1 of 30 in Human History)

    171 views / 0 likes - added

    Porter is 1 of less than 30 people to ever be diagnosed with Beare-Stevenson syndrome. His appearance is unique, but all Porter wants is to run outside and play on his teeter totter.SBSK Patreon: https://www.patreon.com/SBSK SBSK Socials:http://www.instag

  • 10:03 Living with 1000s of Tumors (And Marrying a Man with the Same Condition)

    Living with 1000s of Tumors (And Marrying a Man with the Same Condition)

    184 views / 0 likes - added

    Gail has thousands of tumors due to a condition known as neurofibromatosis. She grew to love herself and was happy to live independently. Gail then met her husband, who lives with the same diagnosis, at age 50.SBSK Patreon: https://patreon.com/SBSKSBSK So

  • 14:11 Life as a Teenage Aspie (Autism, ADHD and Anxiety)

    Life as a Teenage Aspie (Autism, ADHD and Anxiety)

    553 views / 0 likes - added

    Ellie is diagnosed with autism, anxiety and ADHD. While all her peers are getting jobs and boyfriends, she just wants to watch kid cartoons. Ellie wishes she could be more mature, but all that stuff just seems so boring to her.https://www.patreon.com/SBSK

  • 10:12 My Nonverbal Friend with 2 Extra Chromosomes

    My Nonverbal Friend with 2 Extra Chromosomes

    190 views / 0 likes - added

    Cheyenne was diagnosed with an extra of both chromosome 8 and 9 while in utero. Doctors believed she would not survive birth. Cheyenne is now almost 3 years old and is progressing in ways previously thought to be impossible. Although she is currently nonv

  • 13:27 An Autistic Child Explains Autism (Explosions in His Mind)

    An Autistic Child Explains Autism (Explosions in His Mind)

    184 views / 0 likes - added

    Riley is diagnosed with autism and says it is like having "explosions in his mind." He was nonverbal until age 5 and would frequently sneak out of his house to look at the stars. Now able to speak, Riley shares that while stargazing he has always fantasiz

  • 11:15 The 32 Inch Tall Man Who Just Wants to Fit In

    The 32 Inch Tall Man Who Just Wants to Fit In

    334 views / 0 likes - added

    Austin is 32 inches tall and lives with a rare genetic condition known as Mucolipidosis. He was expected to live no more than 5 years but is now 20 and just graduated High school. Austin is sad to see all his friends leave for college and wishes he could

  • 17:16 Christian the Kid (He's Just Like You)

    Christian the Kid (He's Just Like You)

    312 views / 0 likes - added

    Christian is a kid who likes football, silly sounds and wresting with his brother. He is diagnosed with a rare genetic condition that makes him look different, but on the inside he is just like most seven year olds. Watch our first interview from two year

  • 11:25 My Friend with Diprosopus (Two Faces)

    My Friend with Diprosopus (Two Faces)

    472 views / 0 likes - added

    Tres was born with Diprosopus, which is Greek for "Two Faces". He may look different on the outside, but Tres still likes to make friends just like most people. Follow Tres on IG at https://www.instagram.com/diprosopusdiaries/. SBSK's Socials: https://www

  • 10:08 Brock the Star (He's Literally 1 in 50 Million)

    Brock the Star (He's Literally 1 in 50 Million)

    323 views / 0 likes - added

    Brock is diagnosed with Hallermann-Streiff syndrome and is literally 1 in 50 million. Inside he is just a normal kid who wants to play with his friends and have pretend pirate battles. SBSK's Socials: https://www.instagram.com/specialbooksbyspecialkids ht

  • 13:59 Sweet Sophia (Never Underestimate Her)

    Sweet Sophia (Never Underestimate Her)

    353 views / 0 likes - added

    Sophia is a 9 year old girl who likes to make new friends. She is diagnosed with Rett syndrome and lives with a facial deformity. Sophia hopes others will understand that inside she is just like everyone else. Follow Sophia's family on Twitter at https://

  • 07:41 The Girl Born Without a Nose (BAM Syndrome)

    The Girl Born Without a Nose (BAM Syndrome)

    650 views / 4 likes - added

    Tessa was born without a nose and is 1 of less than 100 people in the world to be diagnosed with BAM syndrome. She wants the world to know that she is beautiful with or without a nose. FB: http://www.facebook.com/specialbooksbybyspecialkids IG: http://www

  • 15:45 Living with OCD and Emetophobia (Phobia of Vomiting)

    Living with OCD and Emetophobia (Phobia of Vomiting)

    275 views / 0 likes - added

    Jess is diagnosed with OCD and emetophobia (the fear of vomiting). Although her intrusive thoughts can be debilitating, Jess is learning to cope with mental illness with the support of her husband. Jess's Insta: https://www.instagram.com/jesspaulsonart/ S

  • 26:51 A Day in the Life of Peyton (The World's Sweetest Girl)

    A Day in the Life of Peyton (The World's Sweetest Girl)

    454 views / 0 likes - added

    Peyton is one of less than fifty people to ever be diagnosed with Bixler syndrome. She is also Deaf. Join her as she goes through a typical day at school. Subscribe to Peyton's YouTube Channel: https://www.youtube.com/channel/UCQPrBZ-S15y_caD_SpXd0Zg SBSK

  • 10:03 Living with Three Disabilities (Hydrocephalus, Arthrogryposis, Crouzon syndrome)

    Living with Three Disabilities (Hydrocephalus, Arthrogryposis, Crouzon syndrome)

    305 views / 2 likes - added

    Madina is diagnosed with hydrocephalus, arthrogryposis and crouzon syndrome. She simply wants everyone to have a "chill vibe" around her. SBSK Insta: http://www.instagram.com/specialbooksbyspecialkids Twitter: http://www.Twitter.com/chrisulmer Facebook: h

  • 13:25 An Autistic Teenager (Self-Proclaimed "Aspie")

    An Autistic Teenager (Self-Proclaimed "Aspie")

    300 views / 0 likes - added

    Garrett is autistic and hopes that others will see him as normal. He just wants to fit in. Garrett's Channel: https://www.youtube.com/channel/UCKu7IPWlVbsEdvlG31lJsUA SBSK Insta: http://www.instagram.com/specialbooksbyspecialkids Twitter: http://www.Twitt

  • 13:07 Beth's Journey (Pfeiffer Syndrome)

    Beth's Journey (Pfeiffer Syndrome)

    477 views / 2 likes - added

    Beth is diagnosed with Pfeiffer syndrome. Although she can't yet talk, we quickly became friends. SBSK Insta: http://www.instagram.com/specialbooksbyspecialkids Twitter: http://www.Twitter.com/chrisulmer Facebook: https://www.facebook.com/specialbooksbysp

  • 16:44 One of a Kind Lizzie (The Lizzie Velasquez Story)

    One of a Kind Lizzie (The Lizzie Velasquez Story)

    305 views / 0 likes - added

    Lizzie is one of only a few people to ever be diagnosed with neonatal progeroid syndrome. Instead of pity, she wants you to understand her abilities. Lizzie's Socials: YouTube: https://www.youtube.com/user/lizzitachickita Insta: https://www.instagram.com/

  • 11:11 A Little Person with Huge Ideas (Living with Dwarfism)

    A Little Person with Huge Ideas (Living with Dwarfism)

    246 views / 0 likes - added

    Brandon is diagnosed with rare form of dwarfism known as metatropic dysplasia. At 18 years old he is 45 inches tall. After experiencing bullying Brandon made the decision to fully embrace his identity and celebrate his differences. Now he is encouraging o

  • 19:21 Living Without Body Movement and Supported by a Caregiver (Nemaline Myopathy)

    Living Without Body Movement and Supported by a Caregiver (Nemaline Myopathy)

    260 views / 0 likes - added

    Priscilla is diagnosed with nemaline myopathy and is supported by a caregiver. She wants others to know that behind the ventilator and wheelchair is a person just like you. Connect with Priscilla: Her blog: https://priscillajanae927.wixsite.com/stillirise

  • 31:12 A Day in the Life of Timmy

    A Day in the Life of Timmy

    277 views / 0 likes - added

    Timmy was born blind and found abandoned on a bridge as an infant. Join him as he goes through his typical day. SBSK Insta: http://www.instagram.com/specialbooksbyspecialkids Twitter: http://www.Twitter.com/chrisulmer Facebook: https://www.facebook.com/sp


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